These past few days have been quite a whirlwind. Amy and Selah are still both doing great. Thursday morning we went straight from the NICU to get the MRI and then straight to the OR. The anesthesiologist was very good and is actually having his braces done by one of the good orthodontists that we know. Dr. Carey, Selah's neurosurgeon, not me, had a consult with us after the surgery and told us everything went quite well. They were able to close her spine with no complications and she said she could see good nerve roots. Selah recovered very well after the surgery and Amy was able to start holding her and feeding her on Friday. So far they both have done really well with the nursing. Selah is definitely becoming more animated and signaling when she is hungry. She is still getting most of her nutrients from IV because tomorrow night she will be back off milk to prepare for her shunt placement surgery on Monday morning. Amy may be able to start nursing again Monday night, depending on how quickly she recovers.
We have had all sorts of consultations with the urologist, physical therapist, neurologist, and multiple nurse practitioners, and neonatologists. We are supposed to meet the doctor that is the head of the Spina Bifida team sometime next week. Once the shunt is placed and her head size is reduced, we will focus more on the bowel/bladder issues and lower limbs. All in all, things are going pretty well. We know God has a special plan for her life and are excited for it. Even being in the NICU, we see many other babies that are in much worse situations and are very thankful for the blessings we have. It is so amazing to see how God has already answered many of our prayers. One of our main prayer requests was that Selah would have no issues/ difficulties with breathing on her own or sucking/swallowing. It is such a sweet reminder every time I (Amy) am able to nurse Selah of how awesome God is!
Amy was released from the hospital today. We could have gone home yesterday but elected to stay the extra night to be near Selah. Tonight will be our first night at home. We have had tremendous support from our family, friends, and church. Our parents have been incredible. Selah has also been blessed with the best primary nurse possible! Thank you, Sarah, for your loving care for our daughter! Thank you also to my sweet sister and best friend, Melissa, who has graciously and lovingly been taking care of Sage. We are incredibly blessed to have such wonderful support. Thank you everyone.
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